Released on 2025-10-31
Luxembourg Parkinson's Study Dataset
Accession number
ELU-2-8A302C-1
Description
The cohort includes people with Parkinson’s disease, atypical parkinsonism, and healthy controls, who have their state of health regularly monitored by specialists over many years. The participants donate samples of body fluids such as blood or urine. They also take part in clinical examinations that analyze movement sequences and test their attention, memory, vision, speech, and sense of smell.
- Project Title
- National Centre of Excellence in Research for Parkinson's Disease
- Project website
- https://parkinson.lu/
- Version
- LuxPark
- Created on
- 2025-06-06
- Updated on
- -
- Type of Samples Collected
- Blood stool biopsy
- Number of Samples Collected
- 2678
- Diseases
- Parkinson's disease
- Treatment or experiment categories
- Clinical data
- Data owner
- -
- Main contact
- Rejko Kruger
- rejko.kruger@uni.lu
- Affiliation
- University of Luxembourg
info Constrained permissions
| Use Condition | Remarks | Category (GA4GH) |
|---|---|---|
| The use is limited to research focusing on neurodegenerative disorders | Limited scope of research. Is data consented to be used only in specific research/disease areas? E.g. use only in Biomedical Research. | Other Research-specific restrictions (RS) |
| See the NCER-PD data redistribution framework (Consortium agreement) for more information on obligations related to intellectual property. | Are there any Intellectual Property (IP) restrictions/requirements when using the DATA? | IP claim terms (IP) |
thumb_up Permissions
| Use Condition | Remarks | Category (GA4GH) |
|---|---|---|
| Use outside the European Union is subject to participant consent, which applies to a small part of the asset. | Geographical restriction. Does consent contain clauses that put geographical restrictions to the sharing of data? E.g. not to be shared outside Country A, B, or EU/EEA. | Geographical Restrictions (GS) |
| Consent does not limit the type of recipients. | Restricted type of recipients. Does the consent limit the type of recipients? E.g. data can be sent only to a specific type of institution such as private research institutions or public research institutions or to a named list of institutions. | Institution-Specific restrictions (IS) |
hardware Obligations
| Use Condition | Remarks | Category (GA4GH) |
|---|---|---|
| Data can be kept for duration of the study | Retention time. Does the consent contain clauses that put time-limits on the use of data? | Time Limits on use (TS) |
| GDPR Legal Grounds For Processing Personal Data is Obligated for Whole of asset | Other use restrictions (Other) | |
| The recipient is responsible for strictly following ethical standards and must provide the necessary approvals before data sharing when applicable. | Ethics Approval Required (IRB) | |
| The recipient agrees to return results generated with the shared biomaterial. | Return data to database/resource (RTN) | |
| The recipient agrees to acknowledge the Consortium as appropriate, aligned with its publication policy. | Publication Required (PUB) | |
| The recipient agrees to submit manuscripts to the Consortium for review prior to submission to a journal. | Publication Required (PUB) |